Monday, October 29, 2012
Alright here it is, an update on our little Bear! We finally went to his genetics appointment on the 19th and it went amazingly well considering we had no idea what to expect. We figured we wouldn't leave with many answers, and while we don't know what it is, we did get some answers of what it isn't and that deserves a sweet sigh of relief! Barrett's Dr is almost sure that this isn't Marfan Syndrome (The scary diagnosis) apparently while dislocated lenses are very common in this syndrome it isn't associated with the dislocated pupils at the same time, thank goodness :-) ............ What this does mean is we are still wondering what it is. There is one gene that would mean that this is an isolated issue and as long as everything goes smoothly will be resolved with his surgery and contacts, of course this is what we are now praying for. Barrett's Dr was intrigued by him having never seen this before because it's so rare. If it does come back positive (which we wont find out for a few months) he still wants to see Barrett back because they know so little of this disorder and would like to study him a little more for further knowledge................ If this test does not come back positive then we will be in for a bit of a long haul as they try to figure out what it is, and what else it might affect. Since the issue in his eyes is a connective tissue disorder the other areas that are commonly affected are his joints and heart. There are not any other known genetic disorders that affect the eyes like this that they know of so they would be figuring it for the first time! So the answers could be a wide array of things............... The other thing that was brought to our attention however is that Barrett is displaying signs of another genetic disorder that affects the kidneys. The strange thing is that the signs he is showing are associated with his ears! The genetic world is a fascinating and confusing thing for sure. The Dr said that it is possible that he simply has these traits without them being associated with anything further. We will be having an ultrasound soon which will tell us a little more about this.......... Since Barrett is showing some differences on his ears we are also going to have a professional hearing test just to be sure that he isn't having any issues there. At this appointment little Bear gave some of his blood for the other tests needed. We got a negative test result back on one which was an answer to prayer and now we will be praying for a positive on the second, which will take a couple months to get the results back............. Over all we could not have asked for a more positive outcome from this visit. The Dr was amazing and proactive not wanting to leave anything unchecked. He was interested in our little boy and made us feel that he was truly putting his best interest first which we know is a huge praise! We feel so blessed to have a healthy thriving little man who continues to develop and change every day as if nothing was wrong. His sweet giggles and darling smile are a constant remind that our burden is such a small one compared to what some people have to face......... God is good and our hearts are full as we continue to move forward, as we continue to embrace this little boy into our family. Bear was made in Gods image and he has continued to teach us like any child does :-) We feel honored to love our little man and blessed to have all your love and prayer support...... P.S. I cant figure out how to make it break up my paragraphs, that's why all the..... haha
Sunday, October 7, 2012
“My son is not “perfect” in the eyes of the world.” For the past few weeks this thought all to often dances across my mind whenever we are out. I see the way people look at him, and the pointing. Are they not aware that we CAN see them? We get funny questions about them like “Are they real?”… Nope just playing dress up with my 2 month old “Are those protective glasses.” Yes we are afraid your going to spit in his eyes. Or my favorite so far “Where can I get a pair of those!?!?!”
Friday, September 14, 2012
When our sweet son Barrett was born we noticed right away that his pupils were not in the center of his iris and were also not perfectly round. We asked the Dr, she said it was fine but we got the feeling she didn't totally understand the question. At his 2 week appointment we asked again, this time she understood, agreed and gave us a referral to a Pediatric Ophthalmologist. After a few hang ups and delays we finally had his appointment on the 5th. Unfortunately Cody was gone so I went alone. The kids thankfully both were very well behaved (almost) the entire time for me :-) We met with the tech who took a look at his eyes and then started the dilation process. Because Barrett is so small they had to use a lower concentrated solution drop several times over a half hour to get the needed results, so we waited watching Nemo until it was time. Dr Arnold made a wonderful first impression and I truly feel that Gods hand was involved in getting Barrett in with this Dr.
Tuesday, August 21, 2012
I am not a motivated person in a lot of areas of my life. I give up on things and don't feel bad about it cause it just wasn't right for me ;-) And while I don't feel like I have ever gotten fat, I also haven't ever been "fit" lol. So after having baby #2 I decided its time to make some changes and get into some good healthy habits before this body isn't so young and good to me and I do get fat, because I love my husband way to much to let that happen :-) So here it is out there for everyone to know and see so I cant give up as easily... I hope
A few weeks back I posted about being in love with Mary Kay but that I would be putting it to the ultimate test during labor, obviously that time has come and gone, so how did it do? I will let you decide for yourself, but I sure felt like it held up! Here is a lovely picture of me after my first labor with Willow.... Just stunning ;-p
Thursday, August 16, 2012
It’s only been two short weeks since I met my darling son face to face for the first time. He was small, swollen and screaming but to me he looked like the most handsome little man I had ever seen. My heart instantly grew to make room for another “love of my life”, and I knew there was something amazingly special and different about having a son. He was perfect and he was all mine :-) After my first labor and delivery experience I wouldn’t say it was impossible or anything like that, and I didn’t look back on my experience with dread of ever going through it again. I was in fact excited to be becoming a mother again and even looking forward to a second shot at a natural delivery since my first hadn’t gone according to plan. Today however I will tell you that my first experience was miserable and that I don’t want to ever do that again now that I know what it can be like :-) My son was good to me and I was blessed with an amazing experience this time around.
Monday, July 9, 2012
Today our little man is considered full term at 37 weeks! I'm so happy to have made it to this point. While he still might be like his sister and make a fashionably late appearance into the world, I was a little worried he might pop out early what with all the contractions I have been having for weeks now, when I experianced none with Willow. Its nice to know that while we would love a 40 week baby, he is "allowed" to come out now if he wishes :-) I am so thankful for healthy and mostly easy pregnancies.
Sunday, July 1, 2012
These past few weeks I have noticed a very big change in my little girl. I dont know if its the fact she is almost a year old, or if its because her daddy has been around a lot more since graduating paramedic school, causing our regular schedule to be interrupted some what. Whatever it might be she is once again changing, and I find myself falling in love with her even more. It really does just keep getting better and better!
Monday, June 18, 2012
I have to admit that I am SO torn between wanting this little man out of me, and feeling not ready at all! My hesitations this time around are not at all the same as the ones I shared when Willow was soon to arrive. Labor and delivery doesnt worry me (though I am praying for a natural labor, not pitocin induced). Being prepared for baby isnt a worry cause I know everything just falls into place and has a way of working itself out. And besides Willow is such a joy and blessing why wouldnt I want to meet him RIGHT NOW!|?!?! Well in all honesty Im worried about my little girl Blue. She is such a sweet heart, and the best part of so many of my days (Dont worry I can say that, hubby is gone for days at a time so its just her around ;-)) And if this baby wasnt about to arrive there is no doubt that she would still, and is still our BABY! She will only just be a year old when he is born, and there is no way to help her get ready for this! I know that in ways it will make things easier, or so I am told, but I worry about how she will handle it emotionally. For the past year of her life mommy and daddy have been wrapped around that little finger and would do anything for her. This isn't about to change, she is still our little girl, but she is sure going to think it has :-( *sigh* Heck I'm not even sure I am emotionally prepared! With life being so crazy these past months with Cody in school and what not the "preparing" has been at an all time minimum. Diapers you say? Yeah we plan on picking some up on the way home from the hospital ;-) Whenever I start to think things in a circle and get worried about this next wonderful new addition to our lives I am so thankful that God chose this little man for us, at this time, with all of this in mind. Praise Jesus for crazy plans that keep us on our toes and leaning on Him :-)
Saturday, June 16, 2012
Summer time... it brings a lot of things to mind, most of them wonderful. However for me it also is a time of year with heat which leads to smaller clothing and the inevitable need to lose a few pounds or tone up a bit. Last summer I had none of these thoughts because I was either majorly pregnant or had just given birth and if anyone cared to judge the extras I was packing around I sure didnt mind. This summer I find myself in the same position. Now dont get me wrong as much as its nice to not have to feel bad about it, I do miss the cute sun dresses and shorts ect. I was thinking that maybe next summer I could just be me (or maybe just starting to grow a baby lol) but then I had a awful thought "Its going to be so much more work then ever before to be summer ready!" let me just add that my summer ready isn't even normal person summer ready. You see I have several things working against me when it comes to weight loss and fitness. I am curvy/soft/have some extras to love, whatever you want to call it and I dont mind. I dont have a poor self image and my husband seems to find me attractive (we are popping out the second kid in 12 months after all ;-)) I'm not competitive, like I couldn't care less if you beat me at it or try to guilt me into it, it just doesn't work! I like being content with what I have in life and not comparing it to others, some might see this as a weakness but its something I dont ever want to change. Lastly, I hate working out and I love good food. There are very few fun physical activities I enjoy even, if it gets to hot or sweaty I'm outta there. As for food everyone around me is "discovering" the benefits of eating healthy and rocking the paleo, vegan or some other diet in their lives... I think this is wonderful, for them. I have no desire to do it in my own life however. So whats the point? If I dont care about weight loss, calories or image what on earth would ever get me in shape after baby? Was I just going to resign myself to being a fatty? NOPE! Why not? I love my husband way to much :-) As I have stated he is amazing at making me feel beautiful and like nothing needs to change, but I also know he is a man who appreciates a woman who respects herself and him enough to not just let myself go. So, I have to come up with some kind of plan and motivation. For now I have decided I dont care about losing pounds so I cant set that goal. I don't like to compete so I cant set a goal for myself like running a race or something and since its not about the weight eating right alone wont get me where I need to be... I'm at such a stupid loss for motivation :-) lol Maybe I'll reward myself with a tattoo when my body is "ink worthy" since another one of my personal opinions is ink on fat is nasty ;-P Oh well I still have a little while ot figure it out
Wednesday, June 13, 2012
As some of you might know last October I was introduced to the amazing world of Mary Kay! I went to a friends party to be nice and went home and signed up. I am NOT one to buy into things easy, or at all, but I loved the products so much I wanted the discount like any well meaning woman would. One thing lead to another and I now have a full blown Mary Kay store in my home and am slowly building up a base of loyal customers. As much as the unexpected growth of a certain little someone in my stomach, and the trials of husbands 6 month paramedic school have slowed my original plans for my Mary Kay business, I honestly believe that this is something that the Lord placed on my heart and I'm excited to see where it will take me in the future. Anyways on to my main point. I didn't want to try and pitch products for money, I wanted to get people hooked on awesome products I love... so I tried them all (well almost all), and I loved them! There isn't something I've tried and not liked except the water proof mascara, but they just fixed that with the new lash love in water proof, crisis averted. I have clearer, more even toned, healthy skin and the makeup is just the icing on the cake at the end of a good skin day :-) So whats the test gonna be??? You guessed it LABOR! I, like many other moms out there came out of my first delivery a total hot mess. While it was the last thing I cared about and even looking back now I don't mind, I wouldn't be apposed to coming out on the other side with a little bit of human life left in my face ;-) (just a sample of what last time looked like, and this is a good picture!) Since I don't know what time will allow when labor actually hits I will let you know what products really get the test of time, sweat and crying but you can bet you its going to include my favorite primer and water proof mascara :-) Cant wait to see if it really is up for this task! To be continued.....